RArainbow

A resource blog for young women living with Arthritis


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#RABlogWeek – Day 5 – Exercise and RA

In honour of #RABlogWeek, I am re-posting a previously written article. Today’s prompt asks bloggers to write about their experiences with RA and Exercise. Please share your experiences in the comments so that we can all learn together. Thank you!

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Once you’re diagnosed with Juvenile Rheumatoid Arthritis or Rheumatoid Arthritis, it’s likely that you will start doing physiotherapy sessions to keep you mobile. As a child I remember how I never looked forward to physiotherapy time. It was such a painful process! My joints were swollen and stiff and the last thing I wanted to do was move them. As an adult, I finally understand how important it is to exercise when we have Rheumatoid Arthritis. Since our joints are experiencing inflammation, we need to strengthen our muscles and bones so that they can help us out when our joints aren’t doing too well. Exercise is also important to reduce deformity and fusion in joints. Exercising when you’re flaring sure isn’t easy, so on those tough days I just do what I can. If I muster up the motivation to drag myself to the pool on these days, I have found find that swimming helps my joints to loosen up.

Each of us has been affected by (J)RA differently, so it would be best to go to a physiotherapist and ask for assistance in developing an exercise routine which will be tailored to our specific body. If our joints are damaged, certain exercises may be too stressful for them (and can cause further damage!). However, I have included some links to exercises you can try at the bottom of this post if you need some inspiration. If you are going to attempt classes, inform your instructor about your (J)RA and do what you can manage.

Now, apparently we’re supposed to be doing our exercises on a daily basis :shock:. But as you all know, when you have a lifetime of JRA, taking an hour or two to do physiotherapy doesn’t always happen every day. Not when young ladies have exams to study for, jobs to do, dates to go on or meals to cook (oh, and RA to manage too)! But we must at least try, right? The more we incorporate movement into our routines, the better for us.

Here are some ideas to keep mobile:

1. Exercise while watching television or listening to music. Try to do the exercises you have learned at physiotherapy while you’re watching your favourite television shows. Instead of lying on the couch, lie on the floor and do some stretches so you don’t get too stiff staying in one position.

2. Use your travel time! If you commute using the bus or subway (or have to take a 6-hour flight), use the time to do some wrist and finger exercises. Stretch from time to time to reduce stiffness.

pool3. Swimming and water exercises. Try to swim at the local pool when you get a free evening. If you’re in school, then make use of the pool there. Hey, you might meet some nice guys and girls while you’re there, which will probably motivate you to keep going. I have to say that swimming helps my stiffness a lot and is my favourite physical activity to do. Also, we don’t put a lot of pressure on our joints when we swim, so for me it’s less painful than doing regular floor exercises. In this article from HealthCentral.com, Christine Miller explores the benefits of swimming and doing water exercises with Rheumatoid Arthritis.

4. Have fun at the beach. If you’re near a beach, turn it into a family outing and get some exercise at the same time. Try doing sports (frisbee, running, football, cricket, volleyball etc.) or take a dip in the water to help loosen your joints. If you’re feeling low-energy that day, try sitting on the sand and building sand castles with your friends and loved ones – it’s a great way to get those wrists and finger joints moving.

5. Rub-a-dub-dub…exercise in the tub. Fill up the bathtub with warm water and do your exercises in there. Add bubble bath to make it more exciting and fun.

6. Dance like nobody’s watching! Turn on the music and do some dancing in the living room with your friends or family…or dog! 😉dance

7.  Work out with the kiddies. If you have kids, do the moves to the Hokey Pokey, If you’re happy and you know it and Head and shoulders with them. Even if you don’t have kids, you can still try this one – just be careful who sees you. 😉

8. Go out and dance! Dress up and go out dancing with your friends. There is no pressure here: you get to move at your own pace, have some fun with your friends and get some exercise – what’s better than that?

9. Boy-band dance moves, RA style. If you’re in my age-group then I have no doubt that you have already tried dancing to the Backstreet Boys’ Everybody music video or *NSYNC’s Bye Bye Bye ;). So turn up the music with your friends and show off those choreographed dance moves. 😉

10. Aerobics classes. I really enjoy doing aerobics and find it to be a good way to keep my body mobile. If you cannot do every single move, just do what you can.

11. Take a dance class. When I was younger I did modern dancing and it really helped me because there was a lot of stretching involved. But there are so many types of dance to choose from: ballroom, hip-hop, bhangra, jazz, latin etc. Take your pick!

12. Yoga. Yoga and stretching can be very beneficial for our stiff bodies, although I admit I cannot do every yoga position! Check out this WebMD video which shows some yoga poses you can try with Rheumatoid Arthritis.

13. Zumba classes. Zumba seems to be a huge craze right now. In college I tried Zumba classes and absolutely loved them! You’re pretty much dancing while exercising. It can be a bit intense, so be careful if your joints are very damaged. Do what you can and move at a pace that suits you.

14. Take a walk around your neighbourhood. If all these classes seem too high-energy for you, then a leisurely walk to your park may be just the thing you need to clear your head after a busy day.

15. Learn the dance moves from the Gangnam Style video. Talk about an intense work out!

If you have (J)RA, then I know you have had a few hundred people lecture you on doing exercises by now. But you know what? I’ve found that it genuinely helps me feel better to keep my body active. I know that on some days just walking is a huge task, so do whatever you can. I always think a little exercise a day is better than none at all. Move at your own pace – you know your body best. I’ve included some links to suggested RA exercises below in case you are feeling extra ambitious today. 😉

-Hand Exercises for Rheumatoid Arthritis
http://www.webmd.com/rheumatoid-arthritis/features/hand-exercises-rheumatoid-arthritis
-Joint-friendly fitness routines (picture slide show)
http://www.webmd.com/rheumatoid-arthritis/ss/slideshow-ra-exercises
-Rheumatoid Arthritis and exercise
http://www.webmd.com/rheumatoid-arthritis/guide/exercise-and-rheumatoid-arthritis

Readers, what is your favourite way to keep mobile with Rheumatoid Arthritis?  Feel free to share your ideas in the comments so we can all learn together.

Happy exercising!

Ms. Rainbow

[Images by pixabay.com]


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Infusion tips

[Disclaimer: Today’s discussion points come from my personal experiences as a patient. Always seek medical advice from your doctor.]

Hi everyone! Many of you may be aware that certain biologic medications are administered via intravenous infusion to treat autoimmune arthritis. Perhaps you are at a point where you and your doctor are considering some of these medications. Today I’m going to discuss some tips to make infusions a little more comfortable and a little less scary ;).

Before I started getting medication administered via infusions, the notion of getting my medication through an IV every month really did not appeal to me. But once I got accustomed to the process, I realized there was really nothing to worry about. I actually started to look forward to my infusion day every month, because it was the one day I had a chance to simply relax and catch up on my reading for a few hours! If you are going to start infusions soon, there is no need to worry. I’ve put together some tips which will hopefully make the process a bit more comfortable:

1. Dress comfortably
Since you’re probably going to be lying on a bed or sitting on a chair for a few hours, you may as well dress comfortably. Personally, I like to wear a simple shirt and leggings, as they are soft and allow for easy movement.

Another reason to dress comfortably is the fact that you may have to use the bathroom during your infusion time. The steps to this glamorous dance involve dragging along the IV pole and trying to use the bathroom while trying not to disturb the tubes on your hand too much ;). The first time you use the bathroom will be challenging/hilarious and then you’ll become a pro at it, trust me ;).

2. Keep warm
Hospitals can often be cold, so make sure you come prepared with socks, a hoodie, a scarf or blanket if necessary.

3. Use your time
Since you may have to stay at the hospital for a few hours, it’s a great opportunity for you to catch up on your home-work assignments or readings ;). If you prefer to keep school/work out of the mix for the day, bring along your favourite books, magazines, music or your laptop to help pass the time. For the more artistic patients, make use of the time by working on an art project or painting or drawing. There’s nothing wrong with bringing a little glitter into the infusion room ;).

4. Bring snacks and drinks
Pack a few of your favourite snacks to keep you from getting hungry and drink fluids to stay hydrated.

5. Bring along a favourite toy
This point is aimed toward younger patients. Since infusion time can be a scary experience for younger ones, bring along a favourite toy or story-book to make them feel more comfortable.

6. Alert your doctor or nurse if you suddenly feel sick or notice anything unusual
There is potential for an individual to develop an allergic reaction to biologic medications. Therefore, make sure that you let your doctor or nurse know if you suddenly feel light-headed or notice any itching or rashes.

For all those who undergo infusions, feel free to leave your own tips for others so that we can all learn together. Thank you!

I also found some great articles which I’ve shared below:

All the best,

Ms. Rainbow