“Be the change you wish to see in the world.” – Mahatma Gandhi
My name isn’t really Ms. Rainbow, but I do love rainbows. And hiking and laughing and going to the beach and travelling with my friends. I’m in my late-20s.
This site will focus on issues which affect young women who are growing up with Juvenile Rheumatoid Arthritis (JRA), but all are welcome to read. Whether you’re a young man with JRA, an adult with Rheumatoid Arthritis (RA), or someone trying to learn more about these conditions, I hope you find the information here to be useful. Too often the world views disease as a taboo topic, which can make young people who do have chronic illnesses feel isolated. My wish is that we can all learn and share information here together and that young persons who do have JRA can feel more empowered to go out and live their lives…and conquer the world. 😉
I was diagnosed with Juvenile Rheumatoid Arthritis/Juvenile Idiopathic Arthritis (JIA) at age 7 and I’ve been living with it for the past 21+ years.
In all my time living with JRA, I have met very few persons who had ever heard about this condition. Growing up, I tended not to speak about my illness because it was difficult for me to explain and it hurt me to go through the effort of explaining just to have someone act like I told them I was an alien. 😐
But it’s been over 20 years and I feel that it’s time for me to start talking about it. Life in itself can be demanding for any person. When you throw a chronic illness into that mix, things get even more complex. I decided to create this blog so that young kids with JRA or teens and adults with Rheumatoid Arthritis (RA) will realize that they are not alone in this battle. Growing up I had limited resources to information on my disease. There weren’t any other kids diagnosed with JRA where I lived and I sometimes felt that I was the only person going through this JRA experience.
Now that I am older I realize I’m absolutely not alone, as so many people around the world face and overcome the same challenges which I do. I hope that by writing about my experiences I can help someone feel a little more comfortable with this disease. Even if you’re reading this and you do not have RA, I hope that it gives you some insight into this disease.
Growing up with a chronic disease can be challenging, but we can get through it. On this blog I hope to discuss my experiences growing up and ways in which we can live happier and healthier lives. I hope too that you will share your experiences with me, so that we can all learn from one another. Feel free to look around or leave a comment to let me know you were here. 🙂
THE NAME: RArainbow
Rainbows are one of my favourite things. The band of colours merging into one another is so beautiful and I always feel hopeful when I see one after a shower of rain. I decided to title this blog “RA Rainbow” because even though this disease causes such pain, we must push through to find ways to live happy and fulfilling lives. Having this disease doesn’t mean that you are automatically worthless or that you cannot accomplish anything. We cannot control the rain in our lives, but I’ve realized it’s sometimes up to us to create our own happiness.