RArainbow

A resource blog for young women living with (Juvenile) Rheumatoid Arthritis

Hope

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[Image by Justin Ried ]

Hope dangles on a string
Like slow spinning redemption
Winding in and winding out
The shine of it has caught my eye
And roped me in

– “Vindicated,” Dashboard Confessional

While recently flaring, I came across two beautiful posts which really made me smile. If you are in pain right now, whether you’re 5 years old or 75 years old, I highly recommend reading these posts. 😉

Elizabeth from The Girl With Arthritis wrote such a touching letter to a friend with arthritis, which can apply to all of us. She says:
“Never let arthritis quiet you down. Be loud. Be proud. Be the person you’ve dreamt of being. A diagnosis defines the way your body works- not the person it contains. A mind is a beautiful thing: Never waste it. Even when your body can’t seem to work right, build your mind and you’ll go farther than you would ever believe. I know feeling broken can break you, but know that there is always a rainbow after a storm.”

Read the rest of this lovely post here: http://arthritisgirl.blogspot.com/2013/05/encouragment-for-arthritis.html

Arianna from Painsomnia shares 10 useful and inspiring Tips For Living Well With Chronic Illness:
“It’s OK to cry. I promise. Chronic illness sufferers are masters at hiding pain and we conceal a multitude behind a smile or an ‘I’m fine.’ Although you have to learn to live with pain, ignoring all of the emotions it brings isn’t healthy. So when a bad day comes along, allow the tears to fall. This doesn’t mean you are weak. It just means you’re allowing yourself to acknowledge the pain.”

Read the rest of her wonderful tips here: http://painsomnia.blogspot.com/2013/05/10-tips-for-living-with-chronic-illness.html

When we’re in pain and watching our joints swell or become gradually damaged (while simultaneously pushing ourselves at school or work or caring for our families) it can get overwhelming, especially if people don’t quite understand what we’re going through. It can make us feel isolated, because we’re trying to manage the physical pains and the disease while trying to lead a “normal” life too. As we continue growing, our worlds constantly change and bring with them new challenges.

As we adjust to all these changes, we may sometimes get frustrated. We may get angry or sad and the tears may come – and that’s okay. We try to be Super Women, but the reality is we’re still human and we’re allowed to express our frustration with this disease. Juggling daily pains and life is not a typical situation and it’s natural that we sometimes get overwhelmed along the way. It helps us figure out our lives with Juvenile Rheumatoid Arthritis and we become a little stronger with every hard time. We just have to ensure that we are strong enough to pick ourselves back up and keep going.

In our rough moments with this disease, when we’re lying in bed wondering What is going on with my body? and What’s going to happen to me? we need to remember that there is always hope. I don’t need to convince you of that – you already know it. If you have arthritis you know what it’s like to wake up feeling like every part of your body has been broken. Yet we find the strength every morning to get off the bed and try. We have hope that despite the pain in our bodies, we can still enjoy a beautiful day. And we do. People with arthritis go to school, work, care for families and live their lives as best as they are able.

If today was a bad day, there is hope that tomorrow will be better. I know that some days are really, really hard and we can suddenly feel like we’ve lost our footing, as the pain takes over our bodies and it seems like things are getting worse instead of better. Hang in there, dear friends. Even though I have lived with the roller coaster ride that is JRA for so long, I still fear the future of my body and wonder how I’m going to manage as I get older. But I try not to worry too much and I focus on enjoying the moments and the health which I currently have. And I hope that whatever life throws at me, I’ll find enough strength to make it through. I hope that we all find the strength to make it through…we will. 😉

If you find yourself caught in a deepening hole of sadness, make the effort to pull yourself out.

Think about what you do have and cherish the fact that your body still functions for the most part. Focus on what you can do and celebrate it. You have already come so far with your arthritis. Realize how strong you are physically and mentally. No matter what happens to you, no matter how much this disease throws you to the ground and drains you, remember that you are strong enough to handle it and you are going to make it through. Remember, too, that you are not alone in this and we are all fighting together.

Let’s wrap ourselves in hope and keep pushing ahead dear friends. ❤

Readers, feel free to share your aches and pains or encouragement for others with arthritis.

 

Wishing you all strength,

Love,
Ms. Rainbow

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4 thoughts on “Hope

  1. Beautiful post (and thanks for the shout-out!). I think hope is one of the most precious things you have when you’re faced with a disease like RA/JRA. Sometimes when the symptoms are getting worse and the pain just keeps increasing, it’s tough to stay positive. But eventually, things do get better, although maybe not in the way you originally wanted (for example, instead of getting better maybe you learn new ways to handle your illness. Or maybe you’re still in pain, but you make a new friend or travel somewhere fun or do something that cheers you up) 🙂

  2. I enjoyed the post though I still have to read the Painsomnia tips. It’s easy to imagine how people with autoimmune arthritis feel when they get out of bed and yet there is a lot of good in most days.

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